Part 2 of the “Vis-Ability” series with the Tega Cay Lions Club
For many people living with chronic illnesses — such as autoimmune diseases, fibromyalgia, chronic fatigue syndrome, or long COVID — daily life is shaped by fluctuating energy levels and symptoms that others cannot see. These conditions often lead to misunderstanding, especially when individuals look “fine” outwardly.
“Visible or not, these illnesses impact every part of someone’s day,” says the Tega Cay Lions Club Mental Health Committee. “The most powerful thing we can offer is belief.”
People with chronic illnesses often pace their activities, take rest breaks, or leave events early to prevent debilitating flare-ups. It is essential not to interpret this as a lack of interest or commitment.
Well-intended comments like “You look good today!” or “My friend has that and she’s okay now” can feel invalidating. Instead, try:
“I’m glad to see you. How are you feeling today?”
Offering seating, flexibility, or extra time demonstrates respect and inclusion.
Chronic illness is unpredictable — but compassion doesn’t have to be. When we meet people where they are, we help build a community that understands the difference between looking healthy and feeling healthy.
Meet a Neighbor
“I may look fine,” but I am really hurting. My muscles feel as though a truck ran over me; my legs, back, shoulders, and even my fingers hurt to the touch. I am extremely tired, but resting does not help. Simple chores go unfinished, and social outings are limited. Additionally, I experience cognitive issues such as “fibro-fog” and memory lapses. I always hope that rest will make tomorrow a better day, but then I wake up in unbearable pain. This results in a “flare” where all these symptoms intensify. To manage this, I take medications that cause tiredness, anxiety, and depression. I often isolate myself and avoid calling friends or family.
What does help? Prayer, for one. I am also fortunate to have a wonderful husband who is a great listener and steps in to help. I constantly research and use AI as a resource, and I rely on a strong support system of family and friends. Last but not least, I seek out doctors who are both knowledgeable and good listeners.
The resources and support shared in this article draw in part on information from Good Days, a nonprofit organization dedicated to advocating for people with chronic conditions and helping
them navigate everyday struggles. If you or someone you know is living with chronic illness — or just wants to learn more about what “invisible” disability can really look like — please visit Good Days for additional information, support networks, and helpful resources. Home – MyGoodDays.org | MyGoodDays.org
Thank you for reading. Visit our web page at https://tegacaylions.wixsite.com/tegacaylions for additional community resources. We are always updating these resources. If you know of a community resource that is not listed, please let us know via the contact page on our website.
Tega Cay Lions Club FB page at http://www.facebook.com/tega.cay.lions
